Final farewell to Pavan

Tuesday 22nd December 2015 12:24 EST

Scores of mourners of all ages and backgrounds were united in grief in Birmingham at the funeral of 19-year-old Pavan Tailor. Described by his parents Nita and Sailesh as their “Peter Pan”, Pavan, pictured, was one of only 27 people in the world to have been diagnosed with the rare and incurable metabolic disorder Multiple Sulfatase Deficiency.

Pavan was grandson of Harigangaben Chhaganlal Tailor, originally of Tororo, Uganda. An emotional speech by Kush and Chand, Pavan’s brother and cousin respectively, at the crematorium won applause. Glowing tributes were paid to Pavan, who had brightened up the lives of so many people.

“Pavan was a popular young fellow who brought so many lovely people into our lives”, said Pavan’s parents who have set up a group whose mission is to provide palliative care to young adults with life-limiting and life-threatening conditions to help give them the best quality of adult life. To find out more visit



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