20 month old Anaya Kandola from Newcastle was born 5 weeks premature and diagnosed with ARPKD (Autosomal Recessive Polycystic Kidney Disease ). Her only and best chance of survival is a kidney transplant.
ARPKD caused Anaya to be born with an abnormal liver and two enlarged polycystic kidneys which led to her lungs being underdeveloped and her left side of her heart to be muscular known as HCM due to high blood pressure.
Doctors have now started talking about ‘working up’ to transplant for Anaya which takes 4 to 6 months so we’re hoping by her 2nd birthday she will get a kidney transplant.
Unfortunately, her parents are no longer a kidney donor match due to the number of blood transfusions she has needed and antibodies created.
Waiting to get the call for a kidney match can take years and sadly, we may never receive that call to hospital for her transplant and she will die due to a shortage of Asian people willing to donate their organs.
Although kidney donation can come from any race, however for successful transplant Blood and tissue type need to match.
