Salman Waqar is organising a fundraiser following the death of his four-year-old daughter Yusra Jinaan Waqar, who passed away on 8th March due to an unexpected cardiac arrest.
She was diagnosed with Joubert’s Syndrome before she was even born - an extremely rare genetic condition in children that affects their development - and given uncertain odds of surviving birth.
Yusra was born on 26th September 2017 and despite frequent medical involvement, she was thriving. She attended an additional needs playgroup, making good progress with all her therapies, demonstrating her strength and tenacity, and expressing her vibrant personality with increasing clarity and assertiveness.
Salman writes, “But her part in this world is not done. If you met her you knew. She changed every life she touched. We are creating this fund as a small testament to her memory in a way that can benefit so many more lives. Whilst we are strategising a longer-term legacy, possibly through a separate charity or endowment, we endeavour to put the funds raised here to work with existing organisations and directly support families that are going through similar trials. We hope, in Yusra's name, to be able to bring some 'ease' to those who need it.”
